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... as I'd forgotten one:

Watch 52 films this year. This is actually a ridiculous resolution as I've watched more than that every year except for last year. Not even Maddoc can be blamed for the crap that was 2006 + film and I am so making sure I watch at least a film a week (for christ's sake)!

Then I saw that girliejones had an interesting one about worthy links and so I am going to do a worthy link once a week. By worthy I mean of worth as a discussion topic.

This week's was posted by drewshi and disturbed me as much as it seems to have disturbed him:

Parent's plan to keep disabled child nine years old for the rest of her life...

So that's fifteen now, yes it probably will continue...

Comments

( 47 comments — Leave a comment )
the_faery_queen
Jan. 4th, 2007 02:11 pm (UTC)
i posted it tooo! *cry* tho i wasn't disturbed i was more, hmm. if they're telling the truth and it makes it better for her, fair enough (tho i doubt it) but still, they shouldn't be able to make a decision like that about their kid. what's next, gender reassingment on your kids? sterlising them cos you don't want to be a grandparent?
markdeniz
Jan. 4th, 2007 02:14 pm (UTC)
That's the thing, it seems very much like a case of what's better for the parents and not what is better for all involved... I get knots in my stomach when I read stuff like this and just felt I had to share the knots.

Didn't see the link on yours, did you hide it somewhere?
(no subject) - the_faery_queen - Jan. 4th, 2007 02:17 pm (UTC) - Expand
(no subject) - eneit - Jan. 5th, 2007 04:19 am (UTC) - Expand
(no subject) - the_faery_queen - Jan. 5th, 2007 10:27 am (UTC) - Expand
(no subject) - eneit - Jan. 5th, 2007 12:14 pm (UTC) - Expand
(no subject) - the_faery_queen - Jan. 5th, 2007 12:15 pm (UTC) - Expand
(no subject) - eneit - Jan. 5th, 2007 12:32 pm (UTC) - Expand
(no subject) - the_faery_queen - Jan. 5th, 2007 01:22 pm (UTC) - Expand
(no subject) - eneit - Jan. 5th, 2007 09:11 pm (UTC) - Expand
(no subject) - the_faery_queen - Jan. 5th, 2007 10:04 pm (UTC) - Expand
(no subject) - eneit - Jan. 6th, 2007 01:45 am (UTC) - Expand
(no subject) - the_faery_queen - Jan. 6th, 2007 11:54 am (UTC) - Expand
kroker
Jan. 4th, 2007 04:00 pm (UTC)
The difference is the mental awareness. This is a 3-month-old trapped in a growing body. Granny is an 83-year-old mind trapped in a deteriorating body.

I can totally see the benefits of the treatment.

However, I suspect they'll end up in a bizarre benefit situation when her physical age is adult, and she no longer will benefit from the special care given kids. Although, it being the US with its nonexistent social care system, that will probably be a minor problem anyway.
(no subject) - the_faery_queen - Jan. 4th, 2007 05:02 pm (UTC) - Expand
(no subject) - kroker - Jan. 4th, 2007 08:12 pm (UTC) - Expand
(no subject) - the_faery_queen - Jan. 4th, 2007 08:13 pm (UTC) - Expand
(no subject) - kroker - Jan. 4th, 2007 08:18 pm (UTC) - Expand
(no subject) - markdeniz - Jan. 4th, 2007 08:23 pm (UTC) - Expand
(no subject) - the_faery_queen - Jan. 4th, 2007 08:23 pm (UTC) - Expand
(no subject) - kroker - Jan. 4th, 2007 08:33 pm (UTC) - Expand
(no subject) - the_faery_queen - Jan. 4th, 2007 08:37 pm (UTC) - Expand
(no subject) - kroker - Jan. 4th, 2007 08:46 pm (UTC) - Expand
(no subject) - viciousdisorder - Jan. 5th, 2007 06:49 am (UTC) - Expand
(no subject) - the_faery_queen - Jan. 5th, 2007 10:27 am (UTC) - Expand
(no subject) - viciousdisorder - Jan. 5th, 2007 11:18 am (UTC) - Expand
(no subject) - the_faery_queen - Jan. 5th, 2007 11:23 am (UTC) - Expand
(no subject) - tropic_dm - Jan. 5th, 2007 12:45 pm (UTC) - Expand
(no subject) - the_faery_queen - Jan. 5th, 2007 01:20 pm (UTC) - Expand
(Deleted comment)
markdeniz
Jan. 4th, 2007 02:34 pm (UTC)
Don't encourage me, there's no telling how many I'll end up with!

*shudders*
(Deleted comment)
buymeaclue
Jan. 4th, 2007 02:58 pm (UTC)
I heard about the kiddo a few weeks back, and someone else on my friendslist offered up this link today: http://ashleytreatment.spaces.live.com/

It's the parents' description of what was done and why.

(Looking at the Guardian article, I see it's linked in there as well.)

I'm not sure I'm horrified, but it's a messy situation, that's for sure.
markdeniz
Jan. 4th, 2007 03:01 pm (UTC)
Horrified is a strong word but my brain has been going all over the place since I read it and I felt disturbed and was curious to see what others thought of it.
wild_heart
Jan. 4th, 2007 03:03 pm (UTC)
And what happens to a severely disabled child once the parents are too old or infirmed to care for him/her? Or when the parents are gone?

Quality of life? For whom?
markdeniz
Jan. 4th, 2007 03:05 pm (UTC)
It does seem like everything that is being done is being done from a very one-sided perspective (i.e. the parents') and all sorts of alarm bells have been going off since I read it.

I look at Maddoc and thank the gods (all of them and their pointy hats) that he ended up like he did. I don't know what I would have done otherwise...
(no subject) - kroker - Jan. 4th, 2007 04:05 pm (UTC) - Expand
(no subject) - markdeniz - Jan. 4th, 2007 08:26 pm (UTC) - Expand
(no subject) - kroker - Jan. 4th, 2007 08:34 pm (UTC) - Expand
(no subject) - eneit - Jan. 5th, 2007 04:49 am (UTC) - Expand
kroker
Jan. 4th, 2007 04:01 pm (UTC)
That problem exists even if they hadn't given her the treatment she receives.
integritysinger
Jan. 4th, 2007 07:27 pm (UTC)
oh ok. And so my son, whose disabilites are mental and neurological rather than physical, should stay stupid forever? since he has trouble learning his colors and numbers, I should just throw my hands up in the air and NEVER try to teach it to him?!

Or, I know, since he has trouble with incontinence, I should just keep him in pull ups indefinitely instead of teaching him over and over and over again...

Wait, I'm not finished. How about, since he can't moderate his volume and he can't speak correctly anyway, I should just cut out his tongue and his voice box?

I think i better stop there.

GOD! People piss me off!
markdeniz
Jan. 4th, 2007 08:27 pm (UTC)
*hugs*
kroker
Jan. 4th, 2007 08:37 pm (UTC)
what? how did you read that into this case? they are doing quite the opposite, it seems to me.

of course you should try to help your child to develop to the furthest of his capabilities.

but that's not what this case is about. at all.
eneit
Jan. 4th, 2007 11:25 pm (UTC)
ok, this girl is being lovingly cared for 24 hours a day and the people at the coalface made the decision to not also make her undergo the extra pain of period cramps, the possibility of being raped and having a child. (You think this surgery disturbs you - have a look at the statistics of severely disabled "children" who are raped because they have fully formed bodies)

Ashleys parents know they wont be around for ever, but they've taken steps that may well protect their child in later years - Ashley being kept as a child physically does not mean she will be missing oout on experiences we take for granted. The reality is she can't experience the good things about being an adult that we do, and she is being protected against future threats as well as being given a better quality of life now.

Does anyone, charity groups and all, believe Ashley would ever be able to choose to have a sexual relationship, decide to have children, and be capable of understanding what was happening to her?

Now this is patently not the case, so why should she be forced to go through periods and the attendant health problems that do come with them (iron defficiency anyone? how about osteoporosis from loss of calcium? and these are the minor one! How about having to treat her for thrush and the frequency of urinary tract infections that an adult gets, where children tend not to. Oh and have any of you ever seen what happens to a dementia patient with an undiagnosed UTI?)This surgery means she wont have to undergo Pap smears. I think Ashley's parents have made a very good decision.
markdeniz
Jan. 5th, 2007 09:58 am (UTC)
You and kroker almost have me convinced here but there's something stopping me... I find it hard to explain but asa buymeaclue said, it's very messy.

I'm glad my first link of worth of 2007 has resulted in so much debate though and hope my others do the same...
(no subject) - eneit - Jan. 5th, 2007 10:42 am (UTC) - Expand
( 47 comments — Leave a comment )

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